Marissa’s Bunny
Marissa’s Bunny
Fairfax 3 has had a rough run with slow travels, but has spent his time with some wonderful people. First, with Vicki Forman, then with Elizabeth Aquino, and now, with Danielle Foltz. If you recognize the name, she’s testified before committees discussing the cost of both ACTH and more recently, at the hearing for FDA approval for Vigabatrin/Sabril.
These aren’t quite all the Fairfax in Rhode Island pictures there are. For a few more, including some with Trevor playing with Fairfax (which is cute!), then go to Danielle’s blog.
Fairfax on a driveway snowpile. I haven’t seen this much snow in over a decade.

Fairfax being a woodland creature, has spent a fair amount of time in people’s gardens and other wildlife.

Every IS kid has therapy torture devices. They do a great deal of good, but they may not induce a positive reaction. Marissa doesn’t like it when the ball gets taken off it’s storage spot. Does Trevor like his orange structure?

I’m not sure Fairfax is a good choice for a proofreader, but here he is, checking the grammar on Danielle’s Congressional testimony.

Thanks, Danielle! Fairfax 3 had enough cold and snow- he’s back off to sunny California!
Coming up next- Infantile Spasms, iffy “science”, and the denizens of the internet.
Marissa certainly isn’t the only kid on the eastern seaboard with infantile spasms. This is Trevor and Fairfax at the Boston branch of Marissa’s hospital.
February 3, 2009 12:19 PM
A Burden Shared is a Burden Halved